Showing posts with label caregiver. Show all posts
Showing posts with label caregiver. Show all posts

Sunday, January 25, 2015

Blogger cites 'Rollercoaster' chapter on meds

Award-winning Texas writer, blogger calls 'Rollercoaster' honest and 'worth the read'



Maryann Miller 
Maryann Miller is a literate Texan who covers the book/literary universe on her blog, "It's Not All Gravy."

Her website lists her as an award-winning "diverse writer of columns, feature stories, short fiction, novels, screenplays and stage plays."

Among her numerous honors was being a semi-finalist at the Sundance Institute for her screenplay, "A Question of Honor."

"I've been writing all my life," she says, "and plan to die at my computer, hopefully after finishing a book, not in the middle of one."

Still very much alive, she posted a review today (Jan. 25, 2015) that recommends my VintagePress book, "Rollercoaster: How a man can survive his partner's breast cancer."

Here, in full, is what she wrote about "Rollercoaster" and me, Woody Weingarten:

Any person who has had cancer, or cared for someone with cancer, which means a whole lot of us, will find this book engaging and well worth the read. It is not meant as a caregiver’s guide, although one can take wisdom from some of the ways Woody and his wife coped with her cancer diagnosis and subsequent treatment.

The book is an honest chronicle of the experience from day one, to a wonderful conclusion that is sure to make readers smile. With that honesty comes great doses of humor and the harsh reality that dealing with cancer is an all-consuming experience.

Although the book focuses in large part on the author’s reactions to the cancer roller-coaster, there are sections from the point of view of his wife, Nancy, and the reader is privy to some of her emotions, which also seem to careen wildly at times.

The chapter on medications alone is well worth the price of the book. It details the pros and cons of many medications, such as Avastin, which had been touted as a life-saving drug but lost its FDA approval in 2011.

There were so many medications that came and went that Woody wrote, “The drug debates were giving me a mental whiplash not unlike the impact of being rear ended in the middle of a seven-car crash.”

Several chapters cover the results of research over many years, much of it conflicting, as to the causes of breast cancer. In fact, the information is so varied that Woody wrote, "The causes are about as impossible to pinpoint as locating weapons of mass destruction in Iraq was.”

Some of the messages that rang out clearly for me as I read the book were:

• These feelings are normal.
• Even after successful treatment, fear is still always there.
   While humor can definitely ease stress, anxiety can be malignant.
   Focus on staying healthy.
   False information is rampant.
   Don’t wait. You can never be sure there will be a tomorrow.

I highlighted a lot of the book for future reference, and one of the lines I especially liked was, “Human hope is a wondrous thing to stash in your back pocket.”

I highly recommend this book.

Tuesday, November 25, 2014

Giving thanks on Turkey Day and every day

Breast cancer upshot — a grateful patient who survived, a grateful surviving caregiver


Thanksgiving is but a blink and a quarter away.

Which triggers thoughts about what I'm grateful for (parallel, I expect, to what most folks living in these United States experience).

This year, my wife's 20th free of breast cancer, I'm particularly thankful for her survival. And for my having survived.

And for every day we're alive.

Being a patient can be tough under the best of circumstances. Being a caregiver certainly isn't easy. Facing a life-threatening disease can make it all the more difficult.

I shudder even now when recalling what we've had to deal with — the malady, its treatments and aftermath, an unrelenting up and down journey that I've chronicled in my new VitalityPress book, "Rollercoaster: How a man can survive his partner's breast cancer."

Rainbows bounce off dining room table in
the home of Woody Weingarten and Nancy Fox.
But the image I try to retain in my mind is totally positive. It's of the circular glass-top table in our dining room, one whose artistic acrylic base acts as a prism that turns natural sunbeams into rainbows streaming throughout the room.

Fantabulous! Breathtaking! Not bad!

Twenty years ago we'd wanted to replace our unattractive rectangular wooden table that was surrounded by eight uncomfortable wooden chairs that could have passed for a torture rack.

So we looked, and we looked, and we looked.

Furniture store after discount store after department store.

Nada! Zilch! Diddly squat!

Then, after months of searching, we chanced across a wondrous table at an upscale showroom in Berkeley. We couldn't come close to affording it.

So we decided to track down the San Francisco-based Russian émigré artist who'd created it. And we did.

We asked him if he could build a less expensive version for us. He could.

But we still couldn't afford it.

So we let it go.

Until a couple of months later, when my wife, Nancy Fox, was diagnosed with breast cancer.

We both were terrified she might die — soon.

So we instantly decided to buy the table, figuring we needed to live "here and now" and enjoy whatever we could with whatever time she had left.

Two decades later we're still enjoying the furniture.

Every day.

Even when it's cloudy and there are no rainbows.

And we've mentally amortized its cost so, in our minds, we could afford it.

Tuesday, November 4, 2014

No. 1 book buyer survived breast cancer HIMself

First 'Rollercoaster' purchaser is male breast cancer survivor and a support group advocate


The very first buyer of my book, "Rollercoaster: How a man can survive his partner's breast cancer," was somewhat of a surprise.

He wasn't a caregiver for his wife. He was a breast cancer patient himself.

One of the unlucky 1 percent.

Gerry Bourguignon, a regular member of the support group that I, Woody Weingarten, have been leading almost 20 years, tells on our website — www.Marin-Man-to-Man.org — of his finding an early-stage small lump in his right breast in 2009.
Gerry Bourguignon

A biopsy showed that surgery, a modified mastectomy, was necessary to remove the tumor.

Eighteen months later, he stopped taking the post-surgical med tamoxifen — it's usually recommended for five years — because of "increasingly painful side effects [that] are generally worse for men compared to women."

But he felt okay — physically.

He needed support, however, and that's why he joined (and still attends) our group.

Gerry, a PhD and retired college prof who splits his time between homes in Pollock Pines and Mill Valley, California, is now on the board of directors of the To Celebrate Life Breast Cancer Foundation — www.tocelebratelife.org — an agency that since 1996 has granted more than $4 million to fund emergency and direct services for breast cancer patients.

Its basic mission is to raise money and give financial aid to other nonprofits that help people living with the disease.

Only 1 percent of all breast cancers occur in men — about 2,400 are diagnosed in the United States annually. That compares with nearly 250,000 women, which translates into roughly one every two minutes.

More than 2 million stateside women live with the chronic disease, and about 40,000 die of it each year.

Daunting statistics, perhaps.

But, as I note in "Rollercoaster," we all must remember that "each person is an individual, not a statistic (and that breast cancer couldn't care less about race, creed, sexual orientation or politics)."

Or, in fact, gender.