Hereditary cancers are problem for males as well as for females, says head of genetic risk program

Breast cancer is not just a female problem. It strikes 2,500 men in the United States every year and kills about 500 of them.

Dr. Robert Sidlow

Those statistics come from Dr. Robert Sidlow, director of the Male BRCA Genetic Risk Program at New York's Memorial Sloan Kettering Cancer Center, in a recent Jewish Telegraphic Agency story by Larry Luxner.

Ashkenazi Jews, those of Eastern European descent, are particularly susceptible to the perils caused by a BRCA mutation that elevates the risk to men "not only of breast cancer, but also of melanoma and prostate, ovarian and pancreatic cancer," the article says.

Hundreds "of other mutations in the BRCA gene are just as dangerous, but they're not specific to Ashkenazim," Sidlow is quoted as saying.

The story notes that about "1 in 40 Ashkenazi Jews… carries the harmful mutation, compared to about 1 in 400 in the general population."

Roughly 1-2% of men "with the BRCA1 mutation and 6-7% of men with the BRCA2 mutation will develop cancer by age 80," Sidlow contends.

Luxner's piece also quotes Elana Silver, CEO of Sharsheret (Hebrew for "chain"), to the effect that "it's crucial that men with a family history of cancer undergo genetic counseling screening — via a standard blood or saliva sample — for BRCA and other hereditary cancer mutations."

Adds Silver, "This is not only a women's issue. Family history is so important. When a man shares his family history with his doctor, he may not realize that he should mention that his mother had breast cancer or his sister had ovarian cancer, as these are not general 'men's diseases.' They are not aware that these cancers could mean that they themselves are at increased risk for cancer and that they can pass on these mutations to the next generation."

Sidlow notes that "most men are pretty happy to enroll income kind of surveillance program once they get over the initial shock" of being a mutation carrier.

Luxner's story indicates that there are various precautions they can take for themselves and their children where the BRCA gene is concerned — as well as such mutations as ATM, TP53, CHEK2, and PALB2. They can "monitor their own health more closely, they can encourage their children to test to see if they are carriers and, for any future children, to take steps to prevent the mutated genes from being passed down. For example, couples can conceive via in vitro fertilization, or IVF, and then test the embryo before implantation to ensure that only those unaffected by the genetic mutation are implanted."

Much more information on BRCA1 an BRCA2 can be found in Rollercoaster: How a man can survive his partner's breast cancer, a VitalityPress book that I, Woody Weingarten, its author, aimed at male caregivers.

Hundreds of women, men pose topless to show bodies are beautiful even with mastectomy scars

Hundreds of Delaware women, and men, have been posing topless — to make a point about why bodies are still beautiful even after mastectomies.

Members of the Grace Project, a photo shoot by Charise Isis, say their message is body-acceptance even when it's scarred and "may look flawed to the conventional eye."

According to a recent story by Yusra Asif in the Delaware News Journal, the shoots have been "aimed to capture the courage, beauty and grace of the breast-cancer patients." 

Their theme, the story says, "was inspired by Hellenistic goddess sculptures such as Venus de Milo, a broken relic that has survived the trauma of history and yet is celebrated for its beauty."

Asif's article quotes Isis as declaring that "the people I photograph trust me with their greatest vulnerability, the scars that have been written all over their body, a map of their survival…I get to witness such profound beauty and transformation."

The story also says the project aims at creating awareness of the cancer itself, "especially among underrepresented communities, and the importance of self-examination to detect the disease at an early stage."

One of the men who participated in the shoot, Stephen Sala, a member of the Male Breast Cancer Coalition, told Asif that he'd "do anything to help men understand and get rid of the stigma that it's a woman's disease. We have a slogan that men have breasts, too."

The piece explains that while men "are less likely to get breast cancer, they tend to get diagnosed with more aggressive types and their mortality rate is higher."

Isis' aim is to ultimately take 800 portraits — "the approximate number of new breast-cancer cases in the Unites States every day." She's already done 450. She plans to exhibit them fully once she's reach her goal. For now, she's exhibiting a handful at galleries, museums, hospitals and cancer centers throughout the country.

More information on mastectomy is available in "Rollercoaster: How a man can survive his partner's breast cancer," a book that I, Woody Weingarten, aimed at male caregivers.

No need found for an added diagnostic tool

In diagnosing male breast cancer, ultrasound isn't better than mammography, study says

Ultrasound imaging apparently doesn't provide any more information than mammography when it comes to men's breast cancer.

A new study's conclusion, according to an article on the Breastcancer.org website, is "that mammography should continue to be the main diagnostic tool for detecting breast cancer in men with symptoms."

It originally had been thought ultrasound might offer additional benefits.

The study, whose findings were reported at the recent annual meeting of the Radiological Society of North America, had looked at the records of 360 men above the age of 25 who'd had symptoms that included "feeling a lump, pain, and nipple discharge."

Dr. Eric Blaschke

Dr. Eric Blaschke, one of the study's authors, was quoted as saying, "We didn't find that use of ultrasound in male breast cancer was useful in detecting new cancers."

Some 2,470 men are expected to be diagnosed with breast cancer in 2017, the story noted. "For men, the lifetime risk," according to the website, "is about 1 in 1,000."

Risk factors for men, the site indicates, include growing older (the average age of those diagnosed is about 68), having high estrogen levels, having Klinefelter syndrome (which means having more than one X chromosome), having a strong family history of breast cancer or genetic mutations, and having been treated with radiation to the chest. 

Details about breast cancer, for women and men, can be found in "Rollercoaster: How a man can survive his partner's breast cancer," a VitalityPress book I, Woody Weingarten, aimed at male caregivers.

Risk factors: aging, estrogen, excess weight

2,600 men are facing diagnosis of breast cancer this year, nonprofit says

Politically, the phrase "top 1 percent" has become important — and again was cited recently by Hillary Clinton regarding the imbalance of wealth in our country.

A different 1 percent is equally important.

That's the amount of breast cancers occurring  in men — with about 2,600 expected to be diagnosed with the disease this year, according to the Pennsylvania-based nonprofit, breastcancer.org.

That figure puts the lifetime risk at 1 in 1,000 — small, indeed, but not insignificant.

And life-threatening, perhaps, if you happen to be in that 1 percent.

Because, unlike their female counterparts, men tend not to be screened regularly, the disease is likely to be more advanced when first detected.

Risk factors, according to the breastcancer.org website, can include aging itself (the average diagnosis for men is 68), high estrogen levels resulting from taking hormone meds, being overweight or being a heavy alcohol user.

Or having a strong family history of the disease or a genetic mutation (such as BRCA1 or BRCA2).

Treatments may include surgery, radiation, chemo or hormonal therapy.

Dr. Marisa Weiss 

Experts cited by breastcancer.org include a radiation oncologist, Marisa Weiss of Lankenau Hospital; a surgeon, M. Lisa Attebery of Paoli Hospital; and a Ph.D., Jennifer Harned Adams of the University of Texas.

Another expert, Gerry Bourguignon of Mill Valley, California, one of the regulars in my weekly drop-in breast support group, Marin Man to Man, has also been trying to spread the word about male breast cancer for years.

He, himself, is a survivor.

Want more information about the disease? Consider reading "Rollercoaster: How a man can survive his partner's breast cancer," the VitalityPress book I, Woody Weingarten, aimed at male caregivers.